Friday, October 20, 2017

2 years is a looonngg time

Wow!

Like what i mentioned on my previous post, its been almost 2 - 3years? Life had been really hectic and.... wow. i dont think i can find the right words now to put it across.

Anyways, zyon had started his new school and its almost the end of his second year already. so far~~~~ so good~~~~~ hahaha. Teachers are really helpful and thoughtful.. but, somehow they still need more help. Till date, i still feel that Singapore isn't autism friendly enough. Resources are still considered at low and acceptance from the society, sadly to say has not risen. 

Awareness is definitely there, however awareness and acceptance are entirely whole new different aspects. 

For a special needs school, grading of a student is definitely different from a normal curriculum. Students dont just get upgraded to the next level on a mere yearly basis. They will have to be evaluated base on their behaviour, their social skills and life skills. And although zyon had been in the same class for the past 1 year and 10 months, i feel he had improved and yet regressing at the same time. 

I KNOW. 

How is it possible that he had improved and yet not improved right? Ok, lets just put it this way, he improved a lot base on his communication/ social skills but his behaviour had been really troubling. 

As a mother, i take everything into consideration. Things happening at home, the regular changing of teachers - lets admit it, its not easy to work with children that tends to get violent, its extremely exhausting to teach even a normal child lest 4 or 5 special needs children at one time- , his growing pains, attitude from each and everyone in my child's life all plays a part as a contributing factor. I must say, with every other thing going on at the same time, this IS driving me insane hahahahah!!! But!!! I'm not giving up just yet. I realise this journey would be FILLED with questions that i might never get answers, or even if i get it, it would take a really long time. 

Zyon's behaviour has been getting worse in terms of him biting and hitting. He almost dont realise his own strength when it comes to venting his frustrations. Im sure those who had seen meltdowns knows what its like, plus he aint a small sized boy. So, as much as i would want to try to help him to control himself, the percentage of me getting injured during the process is actually majority of the time. But I'm glad, becos its me, he regains his senses almost immediately as well. And he tries hard to minimise the damages he is creating on the spot. But imagine how others around him are coping.. Ok, the point is, his tantrums are getting much worse as he is growing. Lets call this growing pains. 

He is already 8 this year, 2 years away from 10. Boys at 8 years must have so many to say, so many they want to do. Sadly, being diagnosed as high functioning classic autism would mean as much as he wants to, he is unable to share his thoughts on anything verbally to his own family and make friends. As a child with no friends to play with, how do you think he is coping in his little heart? 

Indescribable loneliness is the word you are looking for. 

And the lonelier he gets, the worse he feels. At this point in time, i can only expect more violent tantrums and the probability of the stage i fear the most. Depression. 
4 out of 5 children on the spectrum have depression. (like autism aint enough and adding this on**face palm) So i am trying very hard to find ways to make his life easier. Ok, till now at this moment, I'm still looking for a solution so if you think i already have something to share, nope. sorry. 
But i will keep up on tracking his emotional pattern and see how i can work from there. 

ok, enough with all the trouble side. Looking at the positive side of his "growing pains" , hahaha he is so smart! Constantly finding ways and means to get his way hahaha! He's started to try talking more, is polite to his teachers and even being like a class monitor :) And improved tremendously on asking for things that he wants instead of just whining. Recently he had even started to talk to my aunt (who is his caregiver for a couple of hours every weekday before i get home from work) and trying hard to work with her so that they can understand each other better! He is relating more to the people around him and seeks attention more than ever. Although i must say the way he is seeking attention is really a headache, but in terms of emotions, this is the right track. Teachers and me working hand in hand, sometimes with his reactions to certain things happening really shows us the great progress that he is achieving. 

So you see, isn't it contradicting? He is definitely getting better, but at the same time, it seems worse too. 

This is basically what had been happening slowly but in a healthy pace during this period of time in a brief sum up but as we go along i will start updating more regularly on his progress and what works and what doesn't. Also, i will start to talk about the people around him dealing with his growing pains. 

stay on this journey with me or share your journey with me. Information is never enough for "living with autism" 

xoxo

next blog : 
About a month ago, we were out and saw this pop up samsung booth in the mall and we tried on the oculus VR gadget they were promoting. I was totally shocked at his reaction. But i will talk more about this oculus VR in my next blog. Spoiler alert, he did something really impressive and we were all very excited!!! 




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