Virtual Reality? **PART 1**

Technology is slowly taking over the world, and as much as it is frowned upon, many too find it really helpful. As you all know, Zyon have been inseparable with his iPad and really relies it on a daily basis. In fact as a non verbal child on the spectrum, till now he is singing and saying many things  that he learnt from the internet world.

The only thing I haven’t done is invite technology to dinner as a way to say a big thank you!

I have met many parents that have commented that taking away their iPads are the best thing that can ever happen. I too have thought about it but yeah am still procrastinating. First thing first, without the iPad there is literally nothing Zyon can do. Living in a country that is basically a city, too crowded for anything would actually mean there is no backyard for him to play in, working mother is never around during the day on a weekday, other than the iPad, there is nothing Zyon can do. So, instead of taking his one and only entertainment away , I might as well focus on what I can do with technology to further my son’s daily activities!

Ok enough of “introducing technology” - autopilot of self defense mechanism - and today I’m not even really talking about iPad or any Apple products, I’m gonna talk about Oculus VR by Samsung. 

Tadah! (VR Oculus with Samsung s8plus)

Ok, back in August, Zyon and I went out for a walk in the mall and we came across the Samsung booth promoting their great offers for National Day. As I had previously already read about what impact virtual reality can have on children on the spectrum, I decided hey why not let Zyon have a go to see his reaction to the virtual world. 

In the beginning, it was all no movement because he was shocked, he kept looking up and down basically because it’s a 360 degree view. Then, he started moving his feet, and from his body actions, you can see that he was actually afraid he would fall and to step forward 😂. He held my hands so tight and I kept reassuring him that “mommy is just right here” , the next thing that happened made me wept! With tears of Joy. 

Zyon’s first ever sentence, describing what he saw 

“Wow! Look at all the stars!!!”

OMG. 

That was the first time in my 8 years with my son, hearing him say a short sentence describing what he saw. I couldn't contain my joy, I was laughing and laughing and felt so happy! 

I texted his teachers, and everyone was thrilled at this amazing response Zyon had. I wanted to buy it on the spot! But!!! here's the catch, this gadget is not cheap at all..... its actually quite pricey. As Oculus is only compatible with Samsung S7 onwards , just the smart phone alone is equivalent to an iPhone and more expensive than an iPad. 

We then explored the VR apps like planets, animals and Disney. These apps are free for download in the Oculus web and there are so many educational choices. example : nat geo and discovery

Honestly I was really tempted to buy it on the spot but wow it was just too expensive, and for it to be affordable, I will have to save some more. haha. During this saving period I did quite a lot of research  on the gadget itself to make sure that the price is justifiable and that it will really be helpful. Ok, I have to admit there is hell lot of games, and if you are a gamer, I can tell you, this gadget is a godsend. 

But im really just into their educational part. Apps like for learning about dinosaurs, animals and planets. Just reading about it online makes me excited! So next month its his 8th birthday, we decided to get him the gadget!!!! And see where it brings him :)

Ok, so if you wanna know more about the gadget, I have linked them below. Take a look and evaluate on whether you think its worth it *winks winks*

I will update on more when he starts using it!! till then!

VR Oculus : https://www.oculus.com

samsung : http://www.samsung.com/sg/smartphones/galaxy-s8/

                 http://www.samsung.com/global/galaxy/galaxy-s7/

VR for autism : https://www.autismspeaks.org/science/science-news/virtual-reality-training-improves-social-skills-and-brain-activity

                         http://www.sciencedirect.com/science/article/pii/S0747563216303089

upcoming blog : "The 3 words my son never says, but shows me everyday" 

2 years is a looonngg time

Wow!

Like what i mentioned on my previous post, its been almost 2 - 3years? Life had been really hectic and.... wow. i dont think i can find the right words now to put it across.

Anyways, zyon had started his new school and its almost the end of his second year already. so far~~~~ so good~~~~~ hahaha. Teachers are really helpful and thoughtful.. but, somehow they still need more help. Till date, i still feel that Singapore isn't autism friendly enough. Resources are still considered at low and acceptance from the society, sadly to say has not risen. 

Awareness is definitely there, however awareness and acceptance are entirely whole new different aspects. 

For a special needs school, grading of a student is definitely different from a normal curriculum. Students dont just get upgraded to the next level on a mere yearly basis. They will have to be evaluated base on their behaviour, their social skills and life skills. And although zyon had been in the same class for the past 1 year and 10 months, i feel he had improved and yet regressing at the same time. 

I KNOW. 

How is it possible that he had improved and yet not improved right? Ok, lets just put it this way, he improved a lot base on his communication/ social skills but his behaviour had been really troubling. 

As a mother, i take everything into consideration. Things happening at home, the regular changing of teachers - lets admit it, its not easy to work with children that tends to get violent, its extremely exhausting to teach even a normal child lest 4 or 5 special needs children at one time- , his growing pains, attitude from each and everyone in my child's life all plays a part as a contributing factor. I must say, with every other thing going on at the same time, this IS driving me insane hahahahah!!! But!!! I'm not giving up just yet. I realise this journey would be FILLED with questions that i might never get answers, or even if i get it, it would take a really long time. 

Zyon's behaviour has been getting worse in terms of him biting and hitting. He almost dont realise his own strength when it comes to venting his frustrations. Im sure those who had seen meltdowns knows what its like, plus he aint a small sized boy. So, as much as i would want to try to help him to control himself, the percentage of me getting injured during the process is actually majority of the time. But I'm glad, becos its me, he regains his senses almost immediately as well. And he tries hard to minimise the damages he is creating on the spot. But imagine how others around him are coping.. Ok, the point is, his tantrums are getting much worse as he is growing. Lets call this growing pains. 

He is already 8 this year, 2 years away from 10. Boys at 8 years must have so many to say, so many they want to do. Sadly, being diagnosed as high functioning classic autism would mean as much as he wants to, he is unable to share his thoughts on anything verbally to his own family and make friends. As a child with no friends to play with, how do you think he is coping in his little heart? 

Indescribable loneliness is the word you are looking for. 

And the lonelier he gets, the worse he feels. At this point in time, i can only expect more violent tantrums and the probability of the stage i fear the most. Depression. 

4 out of 5 children on the spectrum have depression. (like autism aint enough and adding this on**face palm) So i am trying very hard to find ways to make his life easier. Ok, till now at this moment, I'm still looking for a solution so if you think i already have something to share, nope. sorry. 

But i will keep up on tracking his emotional pattern and see how i can work from there. 

ok, enough with all the trouble side. Looking at the positive side of his "growing pains" , hahaha he is so smart! Constantly finding ways and means to get his way hahaha! He's started to try talking more, is polite to his teachers and even being like a class monitor :) And improved tremendously on asking for things that he wants instead of just whining. Recently he had even started to talk to my aunt (who is his caregiver for a couple of hours every weekday before i get home from work) and trying hard to work with her so that they can understand each other better! He is relating more to the people around him and seeks attention more than ever. Although i must say the way he is seeking attention is really a headache, but in terms of emotions, this is the right track. Teachers and me working hand in hand, sometimes with his reactions to certain things happening really shows us the great progress that he is achieving. 

So you see, isn't it contradicting? He is definitely getting better, but at the same time, it seems worse too. 

This is basically what had been happening slowly but in a healthy pace during this period of time in a brief sum up but as we go along i will start updating more regularly on his progress and what works and what doesn't. Also, i will start to talk about the people around him dealing with his growing pains. 

stay on this journey with me or share your journey with me. Information is never enough for "living with autism" 

xoxo

next blog : 

About a month ago, we were out and saw this pop up samsung booth in the mall and we tried on the oculus VR gadget they were promoting. I was totally shocked at his reaction. But i will talk more about this oculus VR in my next blog. Spoiler alert, he did something really impressive and we were all very excited!!! 

its almost 2 years!

Hi all,

Im so terribly sorry that I haven't been posting at all for such a looooonnnnnggggg time....

This period have been hectic and amazing. Loads of self doubts and in searching for answers. But, stop procrastinating, I will be posting soon on the latest updates on my little prince.

Stay tuned!

but as always if you ever need someone to talk to with regards to your child that has just been diagnosed or that you simply would like to gain some acceptance , away from guilt, away from reprimands and away from judgemental comments you are facing on a daily basis, feel free to drop me an email.

You are being supported.

smile becos you dont need a reason to.

xoxo

To all the ignorant people in the world

NO! They are NOT dangerous and Autism is NOT contagious! So stop judging and stop giving Children or adults with Autism weird looks and stares!

When you are looking and judging them with that "thought" in your head, we are looking and judging you at how RUDE you really are.

Please, to all the ignorant people out there, autism is NOT contagious. Your "normal" child would not catch "it" so do NOT pull your children away just because there is an Autistic child in the playground as well. You are sooooooo gXX - damn RUDE.

Just so you know they process, think and feel like an individual.
Learn to educate yourself, this is already the 21st century!

Read this article from the link, from an Autistic child.


http://blog.theautismsite.com/autism-not-bad/?utm_source=aut-autaware&utm_medium=social-fb&utm_term=021516&utm_content=link&utm_campaign=autism-not-bad&origin=aut_autaware_social_fb_link_autism-not-bad_021516

Something to share on "Whats next?"

Hi Guys,

Click on the link to check out Autism Speaks Staffer Kerry Magro's talk on TEDXTALK on "Autism, what happens to children when they become adults?"

“It’s a lifelong disorder. Our kids are growing up, and we have to be ready for them. When they transition to adulthood questions that arise are things such as…will my child be able to find a job? Will my child be able to go to college? Will my child be able to find supports after they age out of school? Will my child be able to live independently or need a group home? Will my child be supported financially? Will my child be able to find love one day? And finally…Will my family take care of my child when I’m gone?”

Im sure many parents, infact all parents have this question running through their head and this is the utmost question we ask ourselves every single day whilst watching our children grow up. 

https://www.autismspeaks.org/news/news-item/inspiring-talk-answers-039what-will-happen-my-child-when-i039m-gone039

Independence is priceless

Recently, Zyon has been showing signs that he is a big boy. 

Making decisions like when he wants to shower, what he wants from the fridge. 

Cleanliness has always been quite systematic for Zyon at home. More like when is it time to shower was originally decided by the adults, me when I'm at home. All i had to do was watch the time and tell him "Zyon, its time to shower! Grab your towel!!" And you will see my baby no matter what he is doing at that time or which part of the house he happens to be in, running to grab his towel and head towards the toilet. 

But now, without anyone saying anything, he walks straight to the toilet, takes off all his clothes and close the door. Before you know it, the sound of splashing water comes on. Not just because he feels warm, but basically I'm guessing it's because of his own personal hygiene. Why do i say this? Because even if he just showered half an hour ago, he would still proceed to shower again if he went to poop. 

Honestly speaking, i feel so proud of him. Its like he is beginning to grab hold of the fact that he has a choice. That he can make choices. Even if it is as simple as deciding himself when he wants to take a shower. Of course the crazy old ladies at home made it seem like its another troublesome issue/ phase Zyon is having because although he knows that he wants a shower but technically he is not able to shower himself just yet, hence it is something that requires assistance from the adults. They just thought he was being "naughty" and troublesome. 

If you have been following my blog you should know that I'm a mother that doesn't very much constrict my children. So i told Zyon what he did was right and I'm so very proud of him. Irregardless of whether it is troublesome or not, in my point of view, my son is showing signs of independence! 

I Cant be More PROUD!!

I held onto him, hugged him tight and look at his face to get his attention, and i told him,

"Mommy is so proud of you! Well done! You are a big boy now :)! Well done!!!"

His reaction to me, though short but sweet. He looked at me with eye contact, smiled then ran off to his books. 

Although I'm not exactly supported by family members who thinks i "condone" my son to doing whatever he wants and likes and i drown him in love. But really, is it? 

I do not deny that i do give him what he wants but it also depends on what exactly is it that he wants! Though not many people don't think in that way. 

Today in this society, many parents are more concerned with adherence to social convention than the progress their children are making. And i do not support that. 

YES, we all want our children to be "normal" like all the other children you see. But honestly what exactly is "normal"? How do you define normal? Doing the same things like everyone is doing? 

Mr A sleeps at 9 am and wakes up at 9pm, seeing this, Mr B does the same thing. Then came Mr C, D,E,F,G etc etc. Then are we to conclude that sleep time from 9am to 9 pm is the "normal"? Thats rubbish. I know the earth doesn't just belong to 1 person. I know the society is created and works in a way that it is able to accommodate to everyone from all over the world. But really? Do i want to follow suit just so i may be accepted as part of the society? That is my only way? To prove my worth in existing? 

Reluctantly and very Sadly, yes.

But i still want to make a difference. Because sometimes i do believe strongly that "you could still want something that is very unlikely to happen, happen". 

I can't change the world, i don't want to. Im not a saint neither can i force anyone to do anything just because i think it is right.  Because everybody in the world speaks their own kind of language, live by their own rules. 

But at least i can make a difference for my son. Im building his foundation. I am preparing his future. I believe in building the right foundation, come rain or shine, he will never fall. 

Autism isn't a fault. Its a variant. it's potentially a major advantage. It is associated with organisation, focus, innovative thinking and rational detachment. Isn't all these points what we all aim to achieve? what we all strive so hard everyday to achieve? 

But my son already achieved it. He is only 6. And he will only be much more evolved than his peers. The world is too slow for Autism. 

Don't ever be happy because you are normal. Normal is nothing. Whether or not you are able to do something or achieve something in your life makes no difference to anyone. Whether or not you exist, the earth still spins. 

But Autism, they take in every single bit of this world and create using all of it. This is something us "normal" people can't do. 

don't you think? 

Its a brand new year. 2016, the year of Zyon.

To the readers that have been following my blog on Autism and progress of my son, i apologise, I haven't been blogging on the updates of my baby boy for quite a while now and yes i am ashamed of myself.

Life has been hectic and i have been lost for quite a while. Lost in my own world, working and running away from problems. Again, i am ashamed of myself, but my self awareness tells me, I'm just human. So kindly pardon me. And pardon yourself.

For the past 1 year, Zyon has been attending classes in AWWA. A special school for children with special needs in Singapore if you don't know what that meant, the full name of it would be Asian Women's Welfare Association.
This (may i say) Institution actually caters for children with all kinds of special needs and not just solely on autism. And like what i have mentioned previously in my earlier blogs, Zyon had to go for the EIPIC program, AWWA was where he was supposed to be stationed at until he reaches the age of 7. Which by the way is this year :)

I must say my son has progressed a lot through his years in AWWA, or rather the EIPIC program and I'm seriously grateful to all the teachers that have helped him along the way. He graduated from his preschool Maris Stella Kindergarten and things have been going on as normal. Although I'm not really sure if he misses Maris Stella, because no matter what, he had been going to the school for the past 4 years. Preschool, the foundation of life and society. Its technically the first place in your life where you get to come in contact with people that has got nothing to do with your family in any way possible, do things that you didn't have to to compromise the fact that this world is home to other people other than yours too. So I'm guessing... nah probably Zyon is happy not going to school. Haha

Currently, even though the new year has begun and every child starts a new school term, Zyon is still attending AWWA. Well like what i have mentioned, AWWA is only able to take him till he reaches 7 so technically he wasn't supposed to be in AWWA anymore. However, the special school that we had picked would not be available for his enrolment until April this year and he had no other schools to attend, so he was placed in one of the classes in AWWA to continue brushing up his motor skills and such until his new school was ready for him.
If i did remember correctly, i actually blogged about the schools i had placed into consideration previously in my earlier posts. Those were Pathlight and St Andrews Autism school. And I'm pretty sure i did mention on why i decided that i did not want him to be placed into Pathlight as much as i thought its really a haven made for every autistic child.
Yep, St Andrews was my ultimate choice and AWWA worked with me to get him a place in the school. I can't tell you how excited i was when AWWA told me that it shouldn't be a problem for zyon to get a place in the school and that they would send a recommendation letter with all the relevant documents that was required. They have been such great help to me.

Anyways, all these happened last year and they told me that i would only get an interview with the school in Jan 2016. So Zyon had an exceptionally long holiday that started in mid november. January came and true enough we got the notification call from St Andrews Autism school notifying us that the interview to see zyon would be on the 15th of february at 2pm. I felt so nervous and excited at the same time. First and foremost, i hadn't been to the school before and i have no idea what inside looks like, was it going to be like Pathlight? Was it going to be like any other normal school? Was it going to be like AWWA? Which would it be?
And i just went on counting down each day with the same questions repeating over and over again in my mind.

Finally, the day came. Thank goodness i didn't push myself to insanity by all these questions going on in my head.
We went for lunch and went to the school. I told zyon as we walked into the premises that this was a new school for him. Then proceeded to meet up with the staff of the school, they needed to evaluate Zyon. We were then told that he had to spend probably and hour and a half with one of the teacher and as parents we were going to be interviewed by another.
The interview was about Zyon's behaviours at home and getting to know him better through the mouth of his parents, and yes, again i have to go through this. Remembering the first time when he got diagnosed, how he came to terms to new environments, his tantrums and such etc etc.

After the interview, i went to look around the school, the classes, cafeteria and pool. They have all kinds of therapies and it seemed really decent. Its not exactly as heaven like as Pathlight but yes its decent. And its like a whole new world in there.
I was mostly comfortable in their facilities and environment, but one place in there scares me.

"The Calming Room"

Ok, when you see the words "Calming Room" , your first natural vision would be white cushioned room maybe with a comfy sofa and toys probably. But no.... when i saw the calming room, it was a squared small room with padded walls and it was grey in color. Nothing else.
Nothing. Else.

My first words were,
"it sure looks like a punishment room instead of a calming one".

It might have seemed rude but that was my first instinct as a mother.
The teacher assured me that its not a punishment room with an awkward smile and i returned one awkward smile back to her.

As we were leaving the school, i can't help but think about the "Calming Room". I mean, i know its probably such because we don't want to provoke their senses with flamboyant colors visually to stress them but really? Grey??? Even Mental institutions uses white color..... ok as a mother, i know how stressful it can be when you have to deal with a normal child's tantrums not to mention the meltdowns of a child with autism! Hence part of me was fearing it might not be that calming after all. And that in the world of Autism, "Calming" seemed like a punishment.

However, brushing all these aside, i think i wouldn't mind to let Zyon try to spend some time in this school and see if he adapts to it... I'm hoping it all turns out well and I'm keeping my fingers crossed.

Reading till here, last year i got an email from a lady asking me questions about autism. Here is a shout out to all of you out there, i know I'm not a doctor and I'm not exactly a professional but i sure do know about Autism. And if you are a parent that just came into contact with this genetic disorder recently and want to know more or, if you are feeling stressed up and just needed some support and having someone to talk to, you are more than welcome to email me and i will reply to you.

Lets stay strong for our children. Nobody is alone in this.
For parents who's considering medication or even some invasive electrifying brain procedures, please remember, our children are NOT sick. They don't need that. They need only your acceptance.

And most important of all, your LOVE.

My email address is : kingyomama@gmail.com