its almost 2 years!

Hi all,

Im so terribly sorry that I haven't been posting at all for such a looooonnnnnggggg time....

This period have been hectic and amazing. Loads of self doubts and in searching for answers. But, stop procrastinating, I will be posting soon on the latest updates on my little prince.

Stay tuned!

but as always if you ever need someone to talk to with regards to your child that has just been diagnosed or that you simply would like to gain some acceptance , away from guilt, away from reprimands and away from judgemental comments you are facing on a daily basis, feel free to drop me an email.

You are being supported.

smile becos you dont need a reason to.

xoxo

To all the ignorant people in the world

NO! They are NOT dangerous and Autism is NOT contagious! So stop judging and stop giving Children or adults with Autism weird looks and stares!

When you are looking and judging them with that "thought" in your head, we are looking and judging you at how RUDE you really are.

Please, to all the ignorant people out there, autism is NOT contagious. Your "normal" child would not catch "it" so do NOT pull your children away just because there is an Autistic child in the playground as well. You are sooooooo gXX - damn RUDE.

Just so you know they process, think and feel like an individual.
Learn to educate yourself, this is already the 21st century!

Read this article from the link, from an Autistic child.


http://blog.theautismsite.com/autism-not-bad/?utm_source=aut-autaware&utm_medium=social-fb&utm_term=021516&utm_content=link&utm_campaign=autism-not-bad&origin=aut_autaware_social_fb_link_autism-not-bad_021516

Something to share on "Whats next?"

Hi Guys,

Click on the link to check out Autism Speaks Staffer Kerry Magro's talk on TEDXTALK on "Autism, what happens to children when they become adults?"

“It’s a lifelong disorder. Our kids are growing up, and we have to be ready for them. When they transition to adulthood questions that arise are things such as…will my child be able to find a job? Will my child be able to go to college? Will my child be able to find supports after they age out of school? Will my child be able to live independently or need a group home? Will my child be supported financially? Will my child be able to find love one day? And finally…Will my family take care of my child when I’m gone?”

Im sure many parents, infact all parents have this question running through their head and this is the utmost question we ask ourselves every single day whilst watching our children grow up. 

https://www.autismspeaks.org/news/news-item/inspiring-talk-answers-039what-will-happen-my-child-when-i039m-gone039

Independence is priceless

Recently, Zyon has been showing signs that he is a big boy. 

Making decisions like when he wants to shower, what he wants from the fridge. 

Cleanliness has always been quite systematic for Zyon at home. More like when is it time to shower was originally decided by the adults, me when I'm at home. All i had to do was watch the time and tell him "Zyon, its time to shower! Grab your towel!!" And you will see my baby no matter what he is doing at that time or which part of the house he happens to be in, running to grab his towel and head towards the toilet. 

But now, without anyone saying anything, he walks straight to the toilet, takes off all his clothes and close the door. Before you know it, the sound of splashing water comes on. Not just because he feels warm, but basically I'm guessing it's because of his own personal hygiene. Why do i say this? Because even if he just showered half an hour ago, he would still proceed to shower again if he went to poop. 

Honestly speaking, i feel so proud of him. Its like he is beginning to grab hold of the fact that he has a choice. That he can make choices. Even if it is as simple as deciding himself when he wants to take a shower. Of course the crazy old ladies at home made it seem like its another troublesome issue/ phase Zyon is having because although he knows that he wants a shower but technically he is not able to shower himself just yet, hence it is something that requires assistance from the adults. They just thought he was being "naughty" and troublesome. 

If you have been following my blog you should know that I'm a mother that doesn't very much constrict my children. So i told Zyon what he did was right and I'm so very proud of him. Irregardless of whether it is troublesome or not, in my point of view, my son is showing signs of independence! 

I Cant be More PROUD!!

I held onto him, hugged him tight and look at his face to get his attention, and i told him,

"Mommy is so proud of you! Well done! You are a big boy now :)! Well done!!!"

His reaction to me, though short but sweet. He looked at me with eye contact, smiled then ran off to his books. 

Although I'm not exactly supported by family members who thinks i "condone" my son to doing whatever he wants and likes and i drown him in love. But really, is it? 

I do not deny that i do give him what he wants but it also depends on what exactly is it that he wants! Though not many people don't think in that way. 

Today in this society, many parents are more concerned with adherence to social convention than the progress their children are making. And i do not support that. 

YES, we all want our children to be "normal" like all the other children you see. But honestly what exactly is "normal"? How do you define normal? Doing the same things like everyone is doing? 

Mr A sleeps at 9 am and wakes up at 9pm, seeing this, Mr B does the same thing. Then came Mr C, D,E,F,G etc etc. Then are we to conclude that sleep time from 9am to 9 pm is the "normal"? Thats rubbish. I know the earth doesn't just belong to 1 person. I know the society is created and works in a way that it is able to accommodate to everyone from all over the world. But really? Do i want to follow suit just so i may be accepted as part of the society? That is my only way? To prove my worth in existing? 

Reluctantly and very Sadly, yes.

But i still want to make a difference. Because sometimes i do believe strongly that "you could still want something that is very unlikely to happen, happen". 

I can't change the world, i don't want to. Im not a saint neither can i force anyone to do anything just because i think it is right.  Because everybody in the world speaks their own kind of language, live by their own rules. 

But at least i can make a difference for my son. Im building his foundation. I am preparing his future. I believe in building the right foundation, come rain or shine, he will never fall. 

Autism isn't a fault. Its a variant. it's potentially a major advantage. It is associated with organisation, focus, innovative thinking and rational detachment. Isn't all these points what we all aim to achieve? what we all strive so hard everyday to achieve? 

But my son already achieved it. He is only 6. And he will only be much more evolved than his peers. The world is too slow for Autism. 

Don't ever be happy because you are normal. Normal is nothing. Whether or not you are able to do something or achieve something in your life makes no difference to anyone. Whether or not you exist, the earth still spins. 

But Autism, they take in every single bit of this world and create using all of it. This is something us "normal" people can't do. 

don't you think? 

Its a brand new year. 2016, the year of Zyon.

To the readers that have been following my blog on Autism and progress of my son, i apologise, I haven't been blogging on the updates of my baby boy for quite a while now and yes i am ashamed of myself.

Life has been hectic and i have been lost for quite a while. Lost in my own world, working and running away from problems. Again, i am ashamed of myself, but my self awareness tells me, I'm just human. So kindly pardon me. And pardon yourself.

For the past 1 year, Zyon has been attending classes in AWWA. A special school for children with special needs in Singapore if you don't know what that meant, the full name of it would be Asian Women's Welfare Association.
This (may i say) Institution actually caters for children with all kinds of special needs and not just solely on autism. And like what i have mentioned previously in my earlier blogs, Zyon had to go for the EIPIC program, AWWA was where he was supposed to be stationed at until he reaches the age of 7. Which by the way is this year :)

I must say my son has progressed a lot through his years in AWWA, or rather the EIPIC program and I'm seriously grateful to all the teachers that have helped him along the way. He graduated from his preschool Maris Stella Kindergarten and things have been going on as normal. Although I'm not really sure if he misses Maris Stella, because no matter what, he had been going to the school for the past 4 years. Preschool, the foundation of life and society. Its technically the first place in your life where you get to come in contact with people that has got nothing to do with your family in any way possible, do things that you didn't have to to compromise the fact that this world is home to other people other than yours too. So I'm guessing... nah probably Zyon is happy not going to school. Haha

Currently, even though the new year has begun and every child starts a new school term, Zyon is still attending AWWA. Well like what i have mentioned, AWWA is only able to take him till he reaches 7 so technically he wasn't supposed to be in AWWA anymore. However, the special school that we had picked would not be available for his enrolment until April this year and he had no other schools to attend, so he was placed in one of the classes in AWWA to continue brushing up his motor skills and such until his new school was ready for him.
If i did remember correctly, i actually blogged about the schools i had placed into consideration previously in my earlier posts. Those were Pathlight and St Andrews Autism school. And I'm pretty sure i did mention on why i decided that i did not want him to be placed into Pathlight as much as i thought its really a haven made for every autistic child.
Yep, St Andrews was my ultimate choice and AWWA worked with me to get him a place in the school. I can't tell you how excited i was when AWWA told me that it shouldn't be a problem for zyon to get a place in the school and that they would send a recommendation letter with all the relevant documents that was required. They have been such great help to me.

Anyways, all these happened last year and they told me that i would only get an interview with the school in Jan 2016. So Zyon had an exceptionally long holiday that started in mid november. January came and true enough we got the notification call from St Andrews Autism school notifying us that the interview to see zyon would be on the 15th of february at 2pm. I felt so nervous and excited at the same time. First and foremost, i hadn't been to the school before and i have no idea what inside looks like, was it going to be like Pathlight? Was it going to be like any other normal school? Was it going to be like AWWA? Which would it be?
And i just went on counting down each day with the same questions repeating over and over again in my mind.

Finally, the day came. Thank goodness i didn't push myself to insanity by all these questions going on in my head.
We went for lunch and went to the school. I told zyon as we walked into the premises that this was a new school for him. Then proceeded to meet up with the staff of the school, they needed to evaluate Zyon. We were then told that he had to spend probably and hour and a half with one of the teacher and as parents we were going to be interviewed by another.
The interview was about Zyon's behaviours at home and getting to know him better through the mouth of his parents, and yes, again i have to go through this. Remembering the first time when he got diagnosed, how he came to terms to new environments, his tantrums and such etc etc.

After the interview, i went to look around the school, the classes, cafeteria and pool. They have all kinds of therapies and it seemed really decent. Its not exactly as heaven like as Pathlight but yes its decent. And its like a whole new world in there.
I was mostly comfortable in their facilities and environment, but one place in there scares me.

"The Calming Room"

Ok, when you see the words "Calming Room" , your first natural vision would be white cushioned room maybe with a comfy sofa and toys probably. But no.... when i saw the calming room, it was a squared small room with padded walls and it was grey in color. Nothing else.
Nothing. Else.

My first words were,
"it sure looks like a punishment room instead of a calming one".

It might have seemed rude but that was my first instinct as a mother.
The teacher assured me that its not a punishment room with an awkward smile and i returned one awkward smile back to her.

As we were leaving the school, i can't help but think about the "Calming Room". I mean, i know its probably such because we don't want to provoke their senses with flamboyant colors visually to stress them but really? Grey??? Even Mental institutions uses white color..... ok as a mother, i know how stressful it can be when you have to deal with a normal child's tantrums not to mention the meltdowns of a child with autism! Hence part of me was fearing it might not be that calming after all. And that in the world of Autism, "Calming" seemed like a punishment.

However, brushing all these aside, i think i wouldn't mind to let Zyon try to spend some time in this school and see if he adapts to it... I'm hoping it all turns out well and I'm keeping my fingers crossed.

Reading till here, last year i got an email from a lady asking me questions about autism. Here is a shout out to all of you out there, i know I'm not a doctor and I'm not exactly a professional but i sure do know about Autism. And if you are a parent that just came into contact with this genetic disorder recently and want to know more or, if you are feeling stressed up and just needed some support and having someone to talk to, you are more than welcome to email me and i will reply to you.

Lets stay strong for our children. Nobody is alone in this.
For parents who's considering medication or even some invasive electrifying brain procedures, please remember, our children are NOT sick. They don't need that. They need only your acceptance.

And most important of all, your LOVE.

My email address is : kingyomama@gmail.com

Communication device gives me hopes

http://blog.theautismsite.com/angrykreedcommunicates/?utm_source=social&utm_medium=autaware-paid&utm_campaign=angrykreedcommunicates&utm_term=20141125

Dear all parents with kids that is on the spectrum.... take a look at the video i shared 😊 if u r thinking of whether or not to get a device, this is awesomely helpful~~~~

Zyon zyon wat do u see? I see mommy looking at me~~~

Bought zyon a 2nd hand book by eric carle who is very famous for his illustrations and story of "the very hungry caterpillar" the last time called "polar bear polar bear wat do u hear?". And i have no idea how he went on to sing it as a song that goes :-

"Polar bear polar bear wat do u see?
I see a lion looking at me~~~"

And he went on the same melody but saying the right animals for the rest of the book. He loved that book and now its kindda tattered and torn but still its his favorite book.

Went to kinokuniya the other day and saw the book "brown bear brown bear wat do u see?" And he was thrilled!!! Then he started singing and went on to the next page "i see a red bird looking at me" 😄😄😄😄 totally awesome! !!! Another surprise to me from my precious lil baby.....

So i thot maybe i can try "the very hungry caterpillar" next... hm..... i wonder... cos personally i have no idea wat that stoey is about actually but it seems zyon is very into its illustrations! I shall explore more and update again 😊😊😊

Cheers ppl!!!